ErinoakKids - Neuromuscular

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Neuromuscular Clinic

Referral Criteria:

Confirmed or suspected diagnosis of:

Muscular dystrophies e.g., (Becker, Duchenne, Limb Girdle, Myotonic dystrophy)
Myopathies e.g., (Congenital Myopathy)
Neuromuscular junction disorders e.g.,(Myasthenia Gravis)
Motor and/or sensory neuropathies e.g.,(Charcot Marie Tooth)
Motor Neuron Disorders e.g., (Spinal Muscular Atrophy (SMA))

Who Can Refer: Paediatric Medical Specialist, Neurologist or Nurse Practitioner (Please include OHIP billing information and all relevant supporting documents)

Who is part of the team: Developmental Paediatrician, Registered Nurse, Physiotherapist, Occupational Therapist, Social Worker and Respiratory Therapist as required

What to expect during the visit: Please plan for 90 minutes for your appointment when you bring your child to ErinoakKids.

What to bring to the appointment:

Your child’s Health Card. The Ministry of Health and Long Term Care requires us to validate your health card at every clinic visit.
In order for the team to complete a full assessment, bring your child’s orthotics, wheelchair and walking aids. Older clients may be more comfortable in shorts during the assessment.
A list or pictures of your child’s equipment at home.
As the appointment may be long, please bring items to engage your child.
Any notes or questions that you may have.
List of current medications and allergies.
Any other forms related to your child’s care, such as reports from previous assessments, letters, school information and x-rays.

How can I prepare my child prior to the visit: Your child may be asked to complete a series of physical tasks in order to assess their mobility and general level of functioning. Your child’s range of motion will be assessed while lying down on the assessment bed.